A Delicate Balance

The good news is that Jordan is starting to stablize. Her body was just really out of whack for awhile, from the meds we think, and now we've mostly corrected the imbalance and finished all of the meds. We still had to watch her sodium and potassium, which is still dropping, but not at a fast rate nor to dangerous levels. It's possible that shell just have to have a little bit of electrolytes added to her breastmilk from now on to keep her from dropping too low. She's back to fussing more than yesterday, but still not nearly what it was like on the ACTH. The VCUG test showed a possible structural glitch that could lead to increases in UTIs, so the ped urologist is going to review the test tomorrow and decide what to do. The options are ignore it and redo the test in 6 months, consider using a prophylactic low-dose antibiotic to prevent UTIs, and, if it is really there, surgery to correct it. On the scale of things, it's really not that important, especially right now, and will not likely have any big long term effects on her health.

Devon is on duty tonight. Jordan still isn't sleeping through the night, so it's pretty rough. For the last 3 nights we've traded. Tonight Avery & I are home for a girls only slumber party. She was really needing some special mommy time. She came to the hospital yesterday and today to visit Jordan, but mostly to play on the great toys they have there. She's been Nana Noma's right-hand-girl for the past few days, and had fun at her red hat tea party at Melba's daycare today.

Avery is starting to lose it, and I only slept from 6:00 to 11:00, so it is bed time! Fingers crossed for coming home tomorrow, and that Jordan is able to regulate her own systems from now on!