Not Much News Here, Much News To The East

We've had a pretty typical weekend. Jordan is still a bit sick ("Juicy Joey"), and has had quite a few bigger seizures than she's had for awhile. She screams a funky scream at the end, which is really quite eerie. So far in September we've had to cancel 2 appointments with her neurologist because of her hospitalizations, but I'm hoping he'll be able to get us in soon. I just hate to see those big seizures, even though I'm getting used to the smaller ones at this point.

Avery had her typical busy weekend. Gymnastics on Saturday morning, and again on Sunday morning because she got moved up into the next level. Then on Saturday afternoon she had 2 birthday parties to attend: her classmate Brandi, and our neighbor Sarah (who turned 3). On Sunday she convinced Devon to take her to the Firstenburg center for swimming, which was helpful to me since I was trying to sort out and load up the toys I cleaned out of the playroom last weekend.

Unfortunately, I missed most of the fun on Saturday & Sunday, because I was trying to get my weekend chores done and at the same time come to terms with my dad's current health situation. On Saturday he had yet another mini-stroke, this time on the right side. He's doing well already, but there is a lot of confusion about his care & what should happen next. The neurologists and cardiovascular docs don't want to deal with his vascular issues until his blood cancer is under control, while the oncologists are not sure what the can do until his vascular issues are taken care of. And the rest of us are trying to figure out how to get him Seattle for a follow up at Fred Hutchinson Cancer Center. He's having some very serious claustrophobia/anxiety issues that make us all concerned about getting him across the state in a car, or an airplane. We're all working together to try to figure this all out.

His treatment during the trial study for MDS didn't completely cure his cancer, although it did have a positive effect on it. However, the next treatment on the plate is a bone marrow or stem cell transplant, and we're all worried that he won't be able to handle the 4 months in isolation. But, like I said, before we can sort out all of that, we need to get him to Seattle. . . .