I have to admit, with the start of a new year, my mind was racing for a summary of the last year. The emotions have been overwhelming, so I wanted to look at the year from a numbers perspective. It's taken awhile to compile it all, but here it goes:
The year in numbers for Jordan
Doctors
5 Pediatricians
3 Anesthesiologists
4 Radiologists
2 Opthamologists
9 Pediatric Neurologists
1 Physiatrist
4 Geneticists
2 Gastroenterologists
1 Nephrologist
Therapists
1 Speech Pathologist
2 Dieticians
1 Occupational Therapist
3 Physical Therapists
PRIDE Early Intervention Classes
Feeding Clinic
Hospitals
Legacy Good Samaritan
Legacy Emanuel
Legacy Salmon Creek
Oregon Health Sciences University
Children’s Hospital of Seattle
Children’s Hospital of Michigan
University of California, Los Angeles
Medical Miscellaneous
G-Tube
Kangaroo Food Pump
Feeding Bags
Feeding Seat
Food Supplements (protein, zinc, calcium, phosphorus, multi-vitamin with fluoride)
1 Emergency Room visit
Suction Machine
ACTH (steroid treatment)
Zantac
Tranxene
Diagnostics
PET Scan (2, on brain)
MRI (3, on brain)
X-Rays (3, shoulder, lungs, skull)
EEGs (130+ hours)
Labs (1 spinal tap, hundreds of blood & urine for infectious, genetic, metabolic, & mitochondrial diseases)
Diagnoses & Characteristics
Cerebral Atrophy
Microcephaly
Infantile Spasms
Hypotonia
Severe Developmental Delay
Cause of Jordan's Health Problems & Diagnoses
Unknown & Undiagnosed
Insurance Billing
$120,600 (not including ~$6000 more in pharmacy)
21 January 2007
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1 comment:
WOW! I hope there is no max on your insurance. Over 30 Drs working on the case! I can't believe they haven't come up with anything! Jordan looks sweet in that picture with Devon. Her little face has changed a lot since I saw her. Have you tallied the number of hours spent with these people?
xox
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