26 August 2007

What To Do When You Don't Know What To Do

In the Rowe household: Demolition! The downstairs bathroom is now hollowed out, and airing out; the bits and pieces loaded up Galen's trailer awaiting a trip to the dump. We were smashing, cutting, crashing, banging, ripping, and sweating like there's no tomorrow, and it felt good!

Under (Jordan's) doctor's orders, and quite a few other people, too, I was told that I had to leave the hospital and do something else while Jordan was cared for here. It's was a very strange feeling to be so "free" for the first time since Jordan was born. I really can't describe it well, but it's was a mix of sadness, grief, relief, anxiety, guilt, and worst of all, the sense of what our life will be like someday when Jordan isn't with us anymore. I was barely functional on Saturday. I couldn't string words together for sentences, could barely eat, and had a pit in my stomach as big as a watermelon. But by golly, I could swing a crowbar!

This weekend was really a test for us. Almost torturous. We didn't know what to do, or what to think. It was excruciating to have our life on hold for the weekend, waiting for the in-home nursing to get sorted out so that Jordan can be discharged. So, we were in survival mode -- waiting to get through the weekend. And neither of us are very good at waiting idly by for things to happen, so we decided to work on a different project, together. The bathroom demolition was just the project we needed. That stinky old bathroom has needed to be gutted since we moved in but we haven't had the "freedom" to do it until this weekend. Avery had a play date with best friend Kate yesterday afternoon, and is having a sleep over at her house tonight, but she got the spirit and helped us out on Sunday morning for awhile.

So now the weekend, and the bathroom are gone, and we're all looking forward to getting out of the hospital and getting Jordan home, with a little extra formal help, too. For once I'm thinking "Yeah Monday!"

Jordan, by the way, is doing fairly well. The Robinul is helping with the secretions, and the increase in Tranxene a couple of days ago seems to be helping with seizures -- although neither are fully controlled. It's possible they never will be.

(sorry, no pictures, as I have limited internet here at the hospital -- later)

2 comments:

Sarah said...

Just catching up on everything that your family has been though over the past week - my thoughts and prayers are with you. Have fun with the demolition!

Marc - http://missmiras.blogspot.com

Julie, Jeff, Jack, WIll and Jasper said...

Wow- I can't believe they kicked you out! Sounds like Jordan is really going through some rough stuff. I really hope she starts feeling better and i hope the bathroom forgives you taking out your anxiety!