The new dietician called the other day with her analysis and said Jordan's diet is great -- except for phosphorus. I need to find a supplement for that, as she's only getting about half of what she should be getting. Mind you, it's not easy getting everything just right, considering that she only eats 525 calories a day -- or "living on air" as they say. It's half of what a typical 2-yr-old would get, and yet she's still in the 75th percentiles for both height and weight.
As far as variety in Jordan's diet, her only suggestion was adding spinach to her rotation**. So we did. Yum. We're going to make sure to make this concoction for St. Patrick's Day!
Meanwhile, The rest of us enjoyed a little chocolate fondue dessert that evening. Double yum! Hey, we did use nice, healthy fruit to dip into the chocolate.Too messy for clothes
*Yes, most people around the country, and even around the world have had very little support, and even opposition to blenderized diets for the tube fed family members. It's insane, really.
**Jordan's daily ingredients: soy yogurt (with live culture), cod liver oil, flaxseed oil, canola oil, corn syrup, blackstrap molasses, oatmeal, barley, flaxseeds. In addition, each day she gets one juice (apple, grape, cranberry, prune, etc), one meat (beef, turkey, chicken, pork), one or two veggies (beans, corn, peas, carrots, squash, spinach, etc), and one fruit (blueberries, peaches, pear, apple, banana, raspberries, etc). She also gets half of a men's daily multi-vitamin, vitamin K, and lots of extra calcium & vitamin D, since seizure meds tend to steal vitamin D from the system. These vitamins get tossed right into the blend.
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