Positively Jordan

Monday was a great day for us for a strange reason I suppose. Jordan had a follow-up appointment with her physiatrist, who hadn't seen her since October. She noticed right away that many things had changed since October -- and all of them for the best.

It's difficult for me to see changes with Jordan, since changes happen so slowly. In fact, most days feel a little like Groundhog Day around here. But, after 7 months, apparently the changes were obvious to the physiatrist. She noticed that Jordan looked at her, and turned her head to her, saw her purposefully moving her hands around (and toward her mouth), and thought she looked healthy with her skin, her height, & her weight (and was glad to hear we are feeding her a blenderized diet of real food instead of formula).

She was excited & enthusiastic and had many ideas & instructions.
1. Get her a new wheelchair so she can sit up -- and get it now (she is even going to try to get the wheelchair company to loan us one until hers arrives within the next few months).
2. Use Botox on her back muscles and her left calf to force her muscles to relax for awhile (one treatment usually lasts 3 to 6 months). This might slow the progression of her scoliosis, and also help keep her from arching.
3. Get her more vision therapy!
4. Get her switch toys. Any battery operated toy can be converted to a switch toy, so she can control it herself.

Later in the day Jordan had appointments with her teacher & her PT, so we already got the ball rolling on the vision therapy & the switch toys. The order went in for the Botox, and this morning we were finally able to order Jordan's new wheelchair, the FAST. I can't wait until she gets it, and doesn't have to lounge about the house all the time in her Kid Kart that's too small & doesn't offer enough support.

Now, we just have to get her out of that ridiculous hip brace. Back to Shriner's next Wednesday, and the orthopedist is going to have his work cut out convincing me that she needs that stupid brace!